{"id":11807,"date":"2019-09-18T15:06:00","date_gmt":"2019-09-18T15:06:00","guid":{"rendered":"https:\/\/torresycarrera.com\/?p=11807"},"modified":"2023-01-25T15:08:16","modified_gmt":"2023-01-25T15:08:16","slug":"el-viaje-de-marta","status":"publish","type":"post","link":"https:\/\/torresycarrera.com\/en\/el-viaje-de-marta\/","title":{"rendered":"El viaje de Marta"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"11807\" class=\"elementor elementor-11807\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-265a397 elementor-section-boxed elementor-section-height-default elementor-section-height-default qodef-elementor-content-no\" data-id=\"265a397\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-0bcc84e\" data-id=\"0bcc84e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c648a87 elementor-widget elementor-widget-text-editor\" data-id=\"c648a87\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"qodef-e-text\"><p>Torres y Carrera, a trav\u00e9s de la Fundaci\u00f3n Alba Torres Carrera, se suma a la iniciativa frente a la enfermedad rara Nieckmann Pick C.<\/p><h5><strong>El viaje de Marta frente a Niemann Pick C<\/strong><\/h5><p>Marta tiene cuatro a\u00f1os y medio y es una de las m\u00e1s 40 personas afectadas por Niemann Pick C en Espa\u00f1a. Ella podr\u00eda ser una las beneficiarias de esta terapia en un futuro.\u00a0<em>\u00abSupimos el diagn\u00f3stico cuando ten\u00eda dos meses de vida. Siempre fue dif\u00edcil para ella comer, moverse, aprender, hacer las cosas que a su edad hac\u00edan otros ni\u00f1os, como incluso gatear o caminar. A d\u00eda de hoy, no puede mantenerse de pie o comer sola\u2026\u00a0<\/em><em>Luchamos y trabajamos cada d\u00eda para ver todo lo bueno que supone vivir con Marta y con la enfermedad. Vivimos con fe esta situaci\u00f3n y disfrutamos cada minuto de ella, con la familia. Su eterna sonrisa es \u2018superaci\u00f3n\u2019 en may\u00fasculas\u201d.<\/em><\/p><p>El que habla es Ignacio, el padre de la peque\u00f1a. Junto a su mujer, Ana, llevan a\u00f1os pendientes de las opciones m\u00e9dicas que existen para poder mejorar la calidad de vida de su hija. As\u00ed es como conocieron a la\u00a0<strong>Fundaci\u00f3n Columbus<\/strong>,\u00a0cuya misi\u00f3n es la de facilitar el acceso a las terapias m\u00e1s avanzadas y efectivas a los que m\u00e1s lo necesitan y junto con la que han organizado una noche ben\u00e9fica el pr\u00f3ximo 27 de septiembre en la Ciudad de la Raqueta, en Madrid. En este evento esperan recaudar la cantidad necesaria para que la fundaci\u00f3n pueda validar el proyecto de terapia g\u00e9nica en el laboratorio, necesario para empezar a hacer el desarrollo de la terapia y que pueda llegar a los pacientes.<\/p><\/div><div class=\"qodef-e-bottom-holder\"><div class=\"qodef-e-left qodef-e-info\">\u00a0<\/div><div class=\"qodef-e-right qodef-e-info\"><div class=\"qodef-shortcode qodef-m  qodef-social-share clear qodef-layout--list \"><ul class=\"qodef-shortcode-list\"><li class=\"qodef-facebook-share\">\u00a0<\/li><\/ul><\/div><\/div><\/div>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Torres y Carrera, a trav\u00e9s de la Fundaci\u00f3n Alba Torres Carrera, se suma a la iniciativa frente a la enfermedad rara Nieckmann Pick C. El viaje de Marta frente a Niemann Pick C Marta tiene cuatro a\u00f1os y medio y es una de las m\u00e1s 40 personas afectadas por Niemann Pick C en Espa\u00f1a. Ella [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":11144,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[368,370],"tags":[],"class_list":["post-11807","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog-2","category-corporate"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>El viaje de Marta - Torres y Carrera<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/torresycarrera.com\/en\/el-viaje-de-marta\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"El viaje de Marta - Torres y Carrera\" \/>\n<meta property=\"og:description\" content=\"Torres y Carrera, a trav\u00e9s de la Fundaci\u00f3n Alba Torres Carrera, se suma a la iniciativa frente a la enfermedad rara Nieckmann Pick C. El viaje de Marta frente a Niemann Pick C Marta tiene cuatro a\u00f1os y medio y es una de las m\u00e1s 40 personas afectadas por Niemann Pick C en Espa\u00f1a. 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